After landing in ‘God’s own country’ (thanks for the line Si), reacquainting myself with fine wine and food, reconnecting and sleeping for 10 hours, I feel that this is the day to reflect back upon what a long, challenging hospital stay is like. Particularly to share some survival ideas and thoughts on the recovery process: the physical and the psychological. Before it all becomes even more blurred than it is already.
My hospital visit had two distinct stages, ones that I imagine are common to all major surgery events. First up is the surgery and its physical impact. No matter what the surgery, being anaesthetised for any length of time is debilitating. It throws your whole system out. Particularly, it leads to food and gas retention. I felt bloated, I looked 6 months pregnant. I was stuffed up for several days and probably did not regain normal bowel function (without intervention) for a week. By which stage I was put under for another op and it all started again – though not for so long.
More than this, the physical shock of the surgery to the body, is exhausting. Rest is essential, obviously. I was not very tuned in to anything for 3 days. This I know because that was when I started the ‘Tales for a hospital bed’, when I first went walkabout with my camera and started the process of daily reflection. Looking back now, without reading my blog posts, I remember very little of the first week. I know I was well cared for physically, my medications helped, the regular monitoring made sure I was stable and I was always asked, ” Are you in any pain?”
The second week was different. By this stage I was physically stable, off the feed tube, eating hospital food and able to walk around Ward 10 and just outside on a regular basis. My pain levels were receding and the main focus was in occupying the time. The support team often used the word ‘boring’ to describe this time. Certainly, that is a potential hazard. Having positive outlets is essential. I can recommend having a daily focus that provides you the opportunity to share how you are feeling and what your day is like.
My regular blog posts and photos both illustrated my thoughts and feelings about each of the two stages of a long hospital visit. By openly discussing and sharing these ideas it allowed me to get out what was in my head and through that process what I was living though. The insight I had during this period, that this was way of being was simply an extension of how I had been working, and that I could continue the process as a mindful blogging/photography practice from then on, seems obvious now. When the penny dropped it was a revelation.
The truth is that caring for our own wellbeing in hospital benefits from an outlet. That could be simply a regular visit from a loved one who can hold your thoughts and feelings with love and compassion. I know that I had this too, but that having the personal written and visual outlet as well, hugely supported my wellbeing.
As I have mentioned, it is this that I am going to continue. Not only with daily blogs (or as close to that as I can manage) but also creating a ‘Photography for Wellbeing’ Workbook for others that will support my own immediate recovery and help others. We all need to talk and sometimes the words cannot be found. Sometimes a photo can say everything we need to say, more profoundly.
I know that some of the thoughts and feelings I have shared in this blog series have been a surprise to some of the medical professionals that have supported me. There are always going to be moments, hours and sometimes days when it all appears too much. The nurses and doctors necessarily focus on the physical difference they can make, and that is essential. However, patient wellbeing includes the psychological as well as the physical. Imagine a situation where there was also that type of support available for patients. How much quicker would recovery and adjustment to the change of life be then?
I feel that it is in this area that my future work will develop. I already have plans for this blog and a book. I have my on going photography project ‘Who Am I Now?’ that complete with an exhibition in 2020. All of that will take 6 months, then I will see where I am and what opportunities have arisen from that work. Most of all though, I like the synthesis between my life and work. They are almost one and the same and that seems like a perfect recipe for patient wellbeing.